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(My son) Kyle's Wish to Walk


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#1 Rory Fitzgerald

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Posted 22 September 2018 - 04:14 pm

There are a few lads on here that will know this and I suspect, alot will not. My youngest son has Cerebral Palsy and is Spastic Diplegic (tightness of leg muscles) meaning he is in a wheelchair. His full story is in the 'spoiler' for those that want to read but the essence is the following - there is a surgical procedure called SDR that cuts the misfiring nerves in the spine and permanently severe any link with the brain. This prevents those misfiring signals from reaching the legs and allows the good nerve/muscle combo to work without contradictory signals. This reduces the spasticity. However, our health system in Ireland won't refer him for surgery in the UK (its not carried out in Ireland). The Irish have been evaluating our children since 2012 as this is the year the UK started carrying out the procedure. My son would not meet the criteria for this surgery in the UK.

 

However, the surgeon (Dr Park) that pioneered this technique is in the US. He has been doing it since 1991 and the neurosurgeon in Leeds that is the UK's expert went to Missouri to work under Dr Park. After resistance and rejection at home, we applied to St Louis Childrens Hospital in Missouri to get the opinion of the best mind in this field given he has successfully operated on over 3,000 children to get them out of their wheelchair and walk.

 

The application consists of MRI, latest hip and spine x-rays, a detailed application form with medical history and a series of videos to show the level of mobility. Kyle as accepted in July. We need to raise a huge amount (£100,000) and I have set up his social media campaign. Like all such campaigns, it will be the family, friends and close community that will get us there with our fundraisers etc. However, if you can get on and "Like and Share" his Facebook Page it could help spread the word further. 

 

As an absolute outsider, if someone on here has a link to the club and get me a signed ball/shirt to auction/raffle would be an absolute bonus.

 

https://www.facebook.com/SDR4Kyle

 

Spoiler

 

 

 



#2 Case

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Posted 22 September 2018 - 04:23 pm

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#3 Dan

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Posted 22 September 2018 - 04:24 pm

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#4 Rory Fitzgerald

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Posted 22 September 2018 - 04:29 pm

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#5 Case

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Posted 22 September 2018 - 04:30 pm

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#6 Rory Fitzgerald

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Posted 22 September 2018 - 04:32 pm

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#7 muleskinner

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Posted 22 September 2018 - 04:49 pm

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#8 Rory Fitzgerald

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Posted 22 September 2018 - 04:55 pm

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#9 muleskinner

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Posted 22 September 2018 - 05:08 pm

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#10 New York Red

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Posted 22 September 2018 - 05:12 pm

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#11 Rory Fitzgerald

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Posted 22 September 2018 - 05:48 pm

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#12 Rory Fitzgerald

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Posted 22 September 2018 - 07:58 pm

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#13 Hassony

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Posted 22 September 2018 - 08:11 pm

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#14 Rory Fitzgerald

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Posted 22 September 2018 - 08:30 pm

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#15 Doyler3000

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Posted 22 September 2018 - 08:55 pm

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#16 Conor M

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Posted 22 September 2018 - 09:59 pm

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#17 EC_Red

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Posted 22 September 2018 - 10:37 pm

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#18 New York Red

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Posted 22 September 2018 - 11:30 pm

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#19 Red2Core

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Posted 22 September 2018 - 11:49 pm

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#20 Crazy Horse

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Posted 23 September 2018 - 12:21 am

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